The Longitudinal Investigation for the Enhancement of Down Syndrome Research (LIFE-DSR) is a multi-year, coordinated research study by medical and academic professionals to track and analyze the medical and physical data of 270 adults with Down syndrome.
LIFE-DSR is an “observational” study. This is not a trial for new medication or therapy. Rather, teams in hospitals and universities collect “data points” (for example, height and weight, sleeping patterns, and blood samples) gathered over time to help researchers form a clearer picture of the physiology of people with DS.
Scientists want to learn more about how adults with Down syndrome (DS) change as they age. They particularly want to develop tools to measure the changes that are associated with Alzheimer’s disease for people with Down syndrome. Scientists and clinicians experienced in research are conducting the study, along with participating doctors, and the LuMind IDSC Foundation.