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Upcoming Webinars

BIAS IN THE HEALTHCARE SYSTEM: ADVOCATING FOR PEOPLE WITH DOWN SYNDROME

WEDNESDAY, OCTOBER 19
1 pm ET | 12 noon CT  | 4 pm PT
Progress has been made in reducing bias against people with Down syndrome and intellectual disabilities. However, significant bias persists as evidenced by the experiences of many people with intellectual disabilities during the COVID-19 pandemic. In this presentation, Brian Chicoine, MD will discuss bias in health care, define ableism, share clinical examples, and discuss strategies to address bias at the individual and system levels.

Past Webinars

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Sleep in Children with Down Syndrome

The Sleep in Children with Down Syndrome webinar discusses the current knowledge and knowledge gap regarding sleep in individuals with Down syndrome. The implications of obstructive sleep apnea and available treatments will be reviewed, including strategies to encourage CPAP use.

 

RECORDING NOW AVAILABLE!

 

Join myDSC to watch the webinar!

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myDSC Webinar Series - Sharing Results from the 2014 Clematis/Basmisanil Clinical Trial

RECORDING NOW AVAILABLE!

 

The Clematis study was the first industry-sponsored, Phase 2, double-blind, placebo-controlled clinical trial in Down syndrome. The study was designed to evaluate the safety and potential benefit of basmisanil treatment on the intellectual disability associated with Down syndrome. Earlier this year, the study results were published and discussed in a scientific journal. The purpose of this webinar will be to meet with the authors who will explain the Clematis study results and share insights from the Seahorse study in children with Down syndrome.

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Skin Conditions and Down Syndrome Part 2

In this two part lecture series, participants will learn about skin conditions seen in children and adults with Down syndrome. This interactive presentation will cover common skin conditions such as dry skin and lips, folliculitis, hidradenitis suppurativa, alopecia areata, and infections such as athlete’s foot and onychomycosis. Dr. Rork will also review less common but important skin conditions, like syringomas and elastosis perforans serpiginosa.

 

Join myDSC to watch the webinar!

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Skin Conditions and Down Syndrome Part 1

In this two part lecture series, participants will learn about skin conditions seen in children and adults with Down syndrome. This interactive presentation will cover common skin conditions such as dry skin and lips, folliculitis, hidradenitis suppurativa, alopecia areata, and infections such as athlete’s foot and onychomycosis. Dr. Rork will also review less common but important skin conditions, like syringomas and elastosis perforans serpiginosa.

 

Join myDSC to watch the recording!

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Down Syndrome Adoption

Date: November 4, 2021   Time: 1 PM ET / 12 PM CT / 10 AM PT

In this webinar, we chat with Stephanie Thompson, Director of the National Down Syndrome Adoption Network about the process of adopting a child with Down syndrome within the United States. We discuss the role the NDSAN plays in supporting expectant and new parents whose child receives a diagnosis of Down syndrome, what is the NDSAN registry, and we take a deep dive into what’s needed to become an adoptive parent of a child with Down syndrome. A live Q&A will follow, allowing folks to ask Stephanie questions.

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Down Syndrome and COVID-19: What You Need to Know

Speakers: Dr. Brian Skotko and Dra. Ana Claudia Brandão
Moderator: Claudia Moreira
Free Access: https://www.youtube.com/watch?v=0gtwz-BLtqg

 

*This webinar is not part of the LuMind IDSC’s Webinar Series.

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Decline in Skills Due to Regression and Alzheimer’s Disease: Similarities and Differences

Aug 11, 2021 01:00 PM in Eastern Time (US and Canada)

Individuals with Down syndrome may experience decline in skills for many reasons. In this presentation, Dr. Chicoine will discuss possible causes for decline in skills, including what has been called “Down syndrome regression syndrome” and Alzheimer’s disease. He will also describe potential treatments and strategies that can be used when supporting an individual with Down syndrome who is experiencing a decline in skills.

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Research in Down Syndrome Associated Alzheimer's Disease: What do we know and where are we going?

June 7th, 2021  Join our experts discuss LuMind IDSC’s current research projects and strategies and learn more about where the science is going with Alzheimer’s disease in the population with Down syndrome. You will also learn about how you can get involved and fight Alzheimer’s disease.

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Fighting Alzheimer's Disease in Down Syndrome: There is Hope!

November 12, 2020
Learn about the association between Alzheimer’s disease and Down syndrome, the latest advances in AD research in Down syndrome and the new attention investment in this field, including new consortia and the prospect of clinical trials in the near future.
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A Day in the Life of MapHabit Webinar

October 21, 2020
Learn about the new MapHabit + LuMind IDSC study that is recruiting children with Down syndrome aged 7 to 17 and their parents to work on important skills with our system while providing data that seeks to help improve the app.

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myGoalNav: Down Syndrome-Associated Alzheimer’s Disease - A caregiver Support App

September 24, 2020
This webinar outlines the myGoalNav: Down syndrome-associated Alzheimer’s disease app which provides support to caregivers of adults with Down Syndrome associated Alzheimer’s disease by helping them manage and track meaningful dementia symptoms.

Promotion of Healthy Eating and Physical Activity in Individuals with Down Syndrome

March 12, 2020
Learn about diet programs and successful physical activity interventions.
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Discovering Patterns of Change in Cognition to Empower Treatment Research

January 16, 2020
Learn how psychometric development is critical to test new medicines.

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Maximizing Cognitive Development in Down Syndrome

November 20, 2019
How and when to promote better sleep to promote learning.

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Understanding and Supporting Speech and Language Development

October 10, 2019
Learn about language development & treatment approaches.
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Connecting Families and Those with Down Syndrome to Research that INCLUDEs Them

September 17. 2019
Learn about NIH’s resources and their new INCLUDE initiative.

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Evaluation and Management of Hearing Loss in Children & Adults with Down Syndrome

August 12, 2019
Overview of timing, tests, classroom accommodations, interventions and devices.

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Alzheimer's Disease and Down Syndrome: What You Need to Know

July 25, 2019
Alzheimer’s Association experts share all: signs to caregiving strategies.
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Understanding Evidence-Based Research with Jim Hendrix, LuMind IDSC CSO

February 29, 2019
Learn how to recognize criteria for evidence-based research.

LIFE-DSR Study for Adults with Down Syndrome to Support Future Clinical Trials

May 30, 2019
Natural history study gathers essential data about Alzheimer’s in Down syndrome.

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Vanderbilt U. Research: Infant Learning Through Objects for Infants with Down Syndrome

January 30, 2018
Adaptive play to maximize object interaction and learning for infants.