LuMind IDSC and the Down Syndrome Clinical Trials Network are pleased to announce the launch of the DS-CTN Data and Safety Monitoring Board (DSMB). This service was created to provide…
ANNOUNCEMENT: Richard Fisher Named as Chief Scientific Officer
Date: 7/28/2022 Last week, Richard A. Fisher, Ph.D. joined LuMind IDSC as Chief Scientific Officer. Dr. Fisher's appointment follows a five-month, international search to fill this leadership role. "Along with…
Date: 4/8/2022 Your advocacy is making a difference! The Down Syndrome Coalition, along with our colleagues from the Down Syndrome Diagnosis Network (DSDN), Down Syndrome Medical Interest Group-USA (DSMIG), International…
CMS Proposal Would Leave Millions of Patients Without Access to FDA Approved Treatments
Date: 3/24/2022 LuMind IDSC President and CEO Hampus Hillerstrom contributed to UsAgainstAlzheimer's and the Global Alzheimer's Platform Foundation's recent statement in opposition to the proposed rule by the Centers for…
LuMind IDSC’s Official Statement in Response to CMS Draft Decision
Date: 2/7/2022 People with Down syndrome are far more likely than the general population to have an Alzheimer's diagnosis by age 65, so access to a new class of Alzheimer's…
Natl. DS Organizations Launch Joint Effort to Change CMS Proposal for Alzheimer’s Treatments
Date: 2/4/2022 Down Syndrome Affiliates in Action (DSAIA), Down Syndrome Medical Interest Group-USA (DSMIG-USA), GiGi's Playhouse Down Syndrome Achievement Centers, Global Down Syndrome Foundation (Global), LuMind IDSC Foundation (LuMind IDSC),…
LuMind IDSC to Collaborate with Merck to Expand Longitudinal Study of Adults with Down Syndrome
Date: 5/11/2021 May 11, 2021 (Burlington, MA) - LuMind IDSC Foundation today announced a new collaboration with Merck, known as MSD outside the United States and Canada, to initiate several…
LuMind IDSC Launches LuMind IDSC Research Consortium with AbbVie and Merck Support
Date: 4/30/2021 Today the LuMind IDSC Foundation, a leading national Down syndrome research and advocacy organization, announced the establishment of the LuMind IDSC Research Consortium to accelerate research into critical…
LuMind IDSC and an International Team of Down Syndrome Experts Publish “Opportunities, Barriers and Recommendations in Down Syndrome Research” in Translational Science of Rare Diseases
Date: 4/19/2021 This week, the Down syndrome community is celebrating the release of an article in the journal: Translational Science of Rare Diseases. Led by LuMind IDSC's Chief Science Officer,…
National Organizations Join Forces To Publish New COVID-19 & Down Syndrome Resource
Date: 3/2/2021 Today, an important and timely COVID-19 and Down Syndrome Resource ("Resource") was published by a consortium of national Down syndrome organizations: the Down Syndrome Medical Interest Group-USA (DSMIG-USA),…
Date: 12/15/2020 The Alana Down Syndrome Center (ADSC) at MIT hosted the New England Down Syndrome Symposium on November 10, 2020 in collaboration with the Massachusetts Down Syndrome Congress (MDSC)…
LuMind IDSC Foundation is a proud supporter of the 1st Evidence-based GLOBAL Medical Care Guidelines for Adults with Down Syndrome(C)
Date: 10/21/2020 LuMind IDSC Foundation is proud to share that we are addressing this by supporting the GLOBAL Medical Care Guidelines for Adults with Down Syndrome(C) that were published in…
MapHabit to Collaborate with LuMind IDSC for Down Syndrome Research
MapHabit is proud to partner with LuMind IDSC Foundation (LuMind IDSC) to offer children with Down syndrome who are 7 to 17 years of age access to the award-winning MapHabit…
Massachusetts General Hospital’s (MGH) Down Syndrome Program Launches Down Syndrome Clinic To You (DSC2U)
Date: 8/10/2020 Clinicians at Massachusetts General Hospital's (MGH) Down Syndrome Program have launched the Down Syndrome Clinic To You (DSC2U), an online portal designed to connect families and primary care…
COVID-19 and Preserving Human Rights for People with Down Syndrome
Date: 3/26/2020 As medical systems plan for a possible flood of COVID-19 patients, healthcare professionals in the United States may draft guidance to ration care in order to ensure the…
LuMind IDSC Foundation & Massachusetts General Hospital Collaborate
Date: 2/28/2020 Current estimates suggest that over 95% of individuals with Down syndrome do not have access to a Down syndrome specialty clinic. Researchers at Massachusetts General Hospital (MGH) created…
Funding Futures Breaking $1 Million in 2020, Featured in Chicago Parent
Date: 1/17/2020 Funding Futures began in 2012 when a group of dedicated families in the Chicagoland area decided to host a fundraising event for LuMind RDS (then DSRTF) with live…
National Non-Profits, Lumind RDS And IDSC, Merge To Provide Improved Health, Independence And Opportunities For Children And Adults With Down Syndrome
March 21, 2019 3:21 p.m. EST Burlington, Mass. – As millions all over the world celebrate World Down Syndrome Day on March 21, two non-profit organizations are taking it one step…
LuMind RDS Foundation and IDSC Collaborate on a Research and Medical Care Facebook Group for Caregivers
BURLINGTON, Mass. January 18, 2019 – LuMind™ Research Down Syndrome Foundation (LuMind RDS) and International Down Syndrome Community (IDSC) are combining resources and expertise on a collaboration to create the IDSC LuMind RDS…
LuMind RDS Foundation Appoints James Hendrix, Ph.D. as Chief Scientific Officer
BURLINGTON, Mass. November 1, 2018 – LuMind™ Research Down Syndrome Foundation (LuMind RDS), a non-profit aimed at improving health and independence through high-impact research, today announced the appointment of James Hendrix,…
LuMind Research Down Syndrome Foundation relocates to Burlington, MA
BURLINGTON, Ma—(October 22, 2018)—Local nonprofit organization, LuMind Research Down Syndrome Foundation (LuMind RDS), opened its new office at 20 Burlington Mall Road in Burlington, Massachusetts on October 15, 2018. The…
Under one roof: LuMind RDS Foundation and Massachusetts Down Syndrome Congress
BURLINGTON, MA — (October 22, 2018) — LuMind™ Research Down Syndrome Foundation (LuMind RDS) and Massachusetts Down Syndrome Congress (MDSC) are now neighbors working together for the greater good. On October…
FUNDING FUTURES CHICAGO EXPANDS TO NEW YORK CITY THIS FALL
Marlborough, MA -(April 12, 2018)- This past January, the sixth annual Funding Futures Chicago (FFC) event raised over $145,000 for LuMind™ Research Down Syndrome Foundation (LuMind RDS) to fund Down syndrome research. Funding…
LuMind RDS launches a research and medical care online community for families and caregivers
At the 2018 Down Syndrome Affiliates in Action Conference, LuMind RDS is launching the Down Syndrome Research Community, a research and medical care online community for families and caregivers For…