DS-CTN Data and Safety Monitoring Board (DSMB)
LuMind IDSC and the Down Syndrome Clinical Trials Network are pleased to announce the launch of the DS-CTN Data and Safety Monitoring Board (DSMB). This service was created to provide…
CMS Proposal Would Leave Millions of Patients Without Access to FDA Approved Treatments
Date: 3/24/2022 LuMind IDSC President and CEO Hampus Hillerstrom contributed to UsAgainstAlzheimer's and the Global Alzheimer's Platform Foundation's recent statement in opposition to the proposed rule by the Centers for…
Natl. DS Organizations Launch Joint Effort to Change CMS Proposal for Alzheimer’s Treatments
Date: 2/4/2022 Down Syndrome Affiliates in Action (DSAIA), Down Syndrome Medical Interest Group-USA (DSMIG-USA), GiGi's Playhouse Down Syndrome Achievement Centers, Global Down Syndrome Foundation (Global), LuMind IDSC Foundation (LuMind IDSC),…
LuMind IDSC Launches LuMind IDSC Research Consortium with AbbVie and Merck Support
Date: 4/30/2021 Today the LuMind IDSC Foundation, a leading national Down syndrome research and advocacy organization, announced the establishment of the LuMind IDSC Research Consortium to accelerate research into critical…
LuMind IDSC and an International Team of Down Syndrome Experts Publish “Opportunities, Barriers and Recommendations in Down Syndrome Research” in Translational Science of Rare Diseases
Date: 4/19/2021 This week, the Down syndrome community is celebrating the release of an article in the journal: Translational Science of Rare Diseases. Led by LuMind IDSC's Chief Science Officer,…
National Organizations Join Forces To Publish New COVID-19 & Down Syndrome Resource
Date: 3/2/2021 Today, an important and timely COVID-19 and Down Syndrome Resource ("Resource") was published by a consortium of national Down syndrome organizations: the Down Syndrome Medical Interest Group-USA (DSMIG-USA),…
LuMind IDSC Foundation is a proud supporter of the 1st Evidence-based GLOBAL Medical Care Guidelines for Adults with Down Syndrome(C)
Date: 10/21/2020 LuMind IDSC Foundation is proud to share that we are addressing this by supporting the GLOBAL Medical Care Guidelines for Adults with Down Syndrome(C) that were published in…
Massachusetts General Hospital’s (MGH) Down Syndrome Program Launches Down Syndrome Clinic To You (DSC2U)
Date: 8/10/2020 Clinicians at Massachusetts General Hospital's (MGH) Down Syndrome Program have launched the Down Syndrome Clinic To You (DSC2U), an online portal designed to connect families and primary care…
National Non-Profits, Lumind RDS And IDSC, Merge To Provide Improved Health, Independence And Opportunities For Children And Adults With Down Syndrome
March 21, 2019 3:21 p.m. EST Burlington, Mass. – As millions all over the world celebrate World Down Syndrome Day on March 21, two non-profit organizations are taking it one step…
LuMind RDS Foundation and IDSC Collaborate on a Research and Medical Care Facebook Group for Caregivers
BURLINGTON, Mass. January 18, 2019 – LuMind™ Research Down Syndrome Foundation (LuMind RDS) and International Down Syndrome Community (IDSC) are combining resources and expertise on a collaboration to create the IDSC LuMind RDS…
LuMind RDS Foundation Appoints James Hendrix, Ph.D. as Chief Scientific Officer
BURLINGTON, Mass. November 1, 2018 – LuMind™ Research Down Syndrome Foundation (LuMind RDS), a non-profit aimed at improving health and independence through high-impact research, today announced the appointment of James Hendrix,…
