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We accelerate Down syndrome research to increase availability of therapeutic, diagnostic, and medical care options and we empower families through education, connections, and support.

OUR IMPACT

300000

People in our online community - The largest digital Down Syndrome Community

85

Dollars devoted to Down syndrome research projects since 2004

14

Clinical site organizations in the Down Syndrome Clinical Trials Network (DS-CTN)

LuMind IDSC is the bridge between the Down syndrome community and Down syndrome research.

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Learn more about research.

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Featured Stories

strong man carries momResearch SpotlightResearch News
January 26, 2023

Results from “Challenges of Caregiving” Survey Published in Research Journal

The LuMind IDSC community and caregiversacross the U.S. participated in “Challenges of Caregiving,” an online survey of caregiver perspectives on a range of topics that are important to the Down…
Oskar and Hampus croppedResearch SpotlightCommunity Spotlight
January 18, 2023

New Year Greetings from Hampus Hillerstrom

Dear Friend of LuMind IDSC, Recently, I spoke with a family whose newborn baby had heart surgery. As many of you who have been through similar experiences can attest to,…
Down syndrome brain and Alzheimer's diseaseResearch SpotlightCommunity Spotlight
January 10, 2023

Statement on accelerated approval of Leqembi to treat mild-stage Alzheimer’s disease in the general population

On Friday, January 6, the U.S. Food & Drug Administration (FDA) granted accelerated approval for lecanemab, an anti-amyloid drug to treat Alzheimer’s disease that was developed by Eisai and Biogen.…
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BECAUSE THEY DID, I CAN, AND WE WILL ADVANCE RESEARCH.

LuMind IDSC invites you and your family to become part of the next chapter: for research that will give us answers.

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