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Understanding key differences among Alzheimer’s clinical trials in Down syndrome

LuMind IDSC releases guide for families learning about Alzheimer's disease therapies MARCH 14, 2025 -…

Kate O’NeillMarch 13, 2025

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RAND report shows benefit of investment in future health outcomes for adults with Down syndrome

10/1/2024 | For immediate release | Contact: Kate O'Neill ([email protected]) Investment in Alzheimer’s Research Today…

Kate O’NeillSeptember 18, 2024

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Updates from AAIC: Down syndrome community boosted by FDA confirmation of label and new anti-amyloid clinical trial

Information revealed at the 2024 AAIC conference on the ACTC-DS-led study in DS-associated Alzheimer's disease…

Kate O’NeillAugust 2, 2024

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FDA issues approval for new Alzheimer’s drug Kisunla; Down syndrome community is optimistic

FDA issues approval for Kisunla, new Alzheimer's drug; Down syndrome community optimistic On Tuesday, July…

Kate O’NeillJuly 3, 2024

Alzheimer's disease in people with Down syndrome

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Down syndrome population will see a clinical trial of new Alzheimer’s drug

Major pharmaceutical company announces Down syndrome population will see a clinical trial of new Alzheimer’s…

Kate O’NeillJune 11, 2024

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Down syndrome collaborators now published in Alzheimer’s and Dementia

“Adapting prescribing criteria for amyloid‐targeted antibodies for adults with Down syndrome” published in the journal…

Kate O’NeillMarch 15, 2024

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LuMind IDSC statement on FDA Advisory Committee for promising Alzheimer’s drug, donanemab

LuMind IDSC is encouraged by today’s news that the U.S. Food and Drug Administration (FDA)…

Kate O’NeillMarch 8, 2024

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Study: Medicare, Medicaid, and Dual Enrollment for Adults with Intellectual and Developmental Disabilities.

Medicare, Medicaid and Dual Enrollment for Adults with IDD Boston University School of Public Health…

Shannon BergstresserJanuary 31, 2024

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Reuters Article: Barriers to Latest Alzheimer’s Treatments for Down Syndrome Community

Hampus Hillerstrom, CEO of LuMind IDSC Foundation and father to a child with Down syndrome,…

Shannon BergstresserNovember 14, 2023

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Boston Globe OpEd People with Down Syndrome Now Left Out of Treatment

LuMind IDSC and The Arc of Northeast collaborated on an OpEd that was recently published…

Kate O’NeillSeptember 18, 2023