2025: A Year of Milestones in DS-AD Community SpotlightResearch Spotlight 2025: A Year of Milestones in DS-AD The medical advances made within the Down syndrome community over the past few decades have…Shannon BergstresserJanuary 31, 2025
RAND report shows benefit of investment in future health outcomes for adults with Down syndrome Research NewsCommunity SpotlightPress ReleaseResearch Spotlight RAND report shows benefit of investment in future health outcomes for adults with Down syndrome 10/1/2024 | For immediate release | Contact: Kate O'Neill ([email protected]) Investment in Alzheimer’s Research Today…Kate O’NeillSeptember 18, 2024
Pathways to Parity Program Approved for $250K PCORI Engagement Award Community SpotlightPress ReleaseResearch Spotlight Pathways to Parity Program Approved for $250K PCORI Engagement Award Project will empower advocates, enhance research for people at high risk of Alzheimer’s disease who…Shannon BergstresserAugust 13, 2024
Updates from AAIC: Down syndrome community boosted by FDA confirmation of label and new anti-amyloid clinical trial Research NewsResearch Spotlight Updates from AAIC: Down syndrome community boosted by FDA confirmation of label and new anti-amyloid clinical trial Information revealed at the 2024 AAIC conference on the ACTC-DS-led study in DS-associated Alzheimer's disease…Kate O’NeillAugust 2, 2024
Down syndrome population will see a clinical trial of new Alzheimer’s drug Community SpotlightPress ReleaseResearch NewsResearch Spotlight Down syndrome population will see a clinical trial of new Alzheimer’s drug Major pharmaceutical company announces Down syndrome population will see a clinical trial of new Alzheimer’s…Kate O’NeillJune 11, 2024
Clinical Trials Day: A Historic Review of the First Clinical Trial Research SpotlightCommunity Spotlight Clinical Trials Day: A Historic Review of the First Clinical Trial James Lind, a United Kingdom's Royal Navy surgeon, is considered the “Father of Clinical Trials.”…Shannon BergstresserMay 17, 2024
Down syndrome collaborators now published in Alzheimer’s and Dementia Community SpotlightPublicationsResearch NewsResearch Spotlight Down syndrome collaborators now published in Alzheimer’s and Dementia “Adapting prescribing criteria for amyloid‐targeted antibodies for adults with Down syndrome” published in the journal…Kate O’NeillMarch 15, 2024
LuMind IDSC statement on FDA Advisory Committee for promising Alzheimer’s drug, donanemab Research NewsCommunity SpotlightResearch Spotlight LuMind IDSC statement on FDA Advisory Committee for promising Alzheimer’s drug, donanemab LuMind IDSC is encouraged by today’s news that the U.S. Food and Drug Administration (FDA)…Kate O’NeillMarch 8, 2024
Study: Medicare, Medicaid, and Dual Enrollment for Adults with Intellectual and Developmental Disabilities. Research NewsResearch Spotlight Study: Medicare, Medicaid, and Dual Enrollment for Adults with Intellectual and Developmental Disabilities. Medicare, Medicaid and Dual Enrollment for Adults with IDD Boston University School of Public Health…Shannon BergstresserJanuary 31, 2024
Message from the CEO: a look ahead to 2024 Community SpotlightResearch Spotlight Message from the CEO: a look ahead to 2024 “I want to enjoy my life for a long time. I want to grow old…Kate O’NeillJanuary 18, 2024