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RAND report shows benefit of investment in future health outcomes for adults with Down syndrome

10/1/2024 | For immediate release | Contact: Kate O'Neill ([email protected]) Investment in Alzheimer’s Research Today…

Kate O’NeillSeptember 18, 2024

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Pathways to Parity Program Approved for $250K PCORI Engagement Award

Project will empower advocates, enhance research for people at high risk of Alzheimer’s disease who…

Shannon BergstresserAugust 13, 2024

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Updates from AAIC: Down syndrome community boosted by FDA confirmation of label and new anti-amyloid clinical trial

Information revealed at the 2024 AAIC conference on the ACTC-DS-led study in DS-associated Alzheimer's disease…

Kate O’NeillAugust 2, 2024

Alzheimer's disease in people with Down syndrome

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Down syndrome population will see a clinical trial of new Alzheimer’s drug

Major pharmaceutical company announces Down syndrome population will see a clinical trial of new Alzheimer’s…

Kate O’NeillJune 11, 2024

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Clinical Trials Day: A Historic Review of the First Clinical Trial

James Lind, a United Kingdom's Royal Navy surgeon, is considered the “Father of Clinical Trials.”…

Shannon BergstresserMay 17, 2024

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Down syndrome collaborators now published in Alzheimer’s and Dementia

“Adapting prescribing criteria for amyloid‐targeted antibodies for adults with Down syndrome” published in the journal…

Kate O’NeillMarch 15, 2024

Feb2018 AlzheimersInDs 637297080437914151 o6UI7E

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LuMind IDSC statement on FDA Advisory Committee for promising Alzheimer’s drug, donanemab

LuMind IDSC is encouraged by today’s news that the U.S. Food and Drug Administration (FDA)…

Kate O’NeillMarch 8, 2024

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Study: Medicare, Medicaid, and Dual Enrollment for Adults with Intellectual and Developmental Disabilities.

Medicare, Medicaid and Dual Enrollment for Adults with IDD Boston University School of Public Health…

Shannon BergstresserJanuary 31, 2024

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Message from the CEO: a look ahead to 2024

“I want to enjoy my life for a long time. I want to grow old…

Kate O’NeillJanuary 18, 2024

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Boston Globe OpEd People with Down Syndrome Now Left Out of Treatment

LuMind IDSC and The Arc of Northeast collaborated on an OpEd that was recently published…

Kate O’NeillSeptember 18, 2023