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Boy with Down syndrome sits on the floor playing legos with his mom and dad.Hampus Hillerstrom, CEO of LuMind IDSC Foundation and father to a child with Down syndrome, knows about the barriers people with Down syndrome face in accessing the latest Alzheimer’s treatments. There is a 90% chance of a person with Down syndrome to be diagnosed with Alzheimer’s disease at some point in their life. It’s why he is leading the charge and advocating for change to address the current inequities facing the Down syndrome community.

“The goal is to make sure we get access,” he said. “Ideally, we needed to be part of these trials from the beginning.”

You can read more about the inaccessibility of Alzheimer’s drugs to the Down syndrome community in the “Down syndrome families’ fight for access to Alzheimer’s trials, treatments” article from Reuters published by Julie Steenhuysen on October 10, 2023.

Other Resources:

Sign the public petition calling for equal access to Alzheimer’s drugs and other healthcare innovations here.

Learn more about this complicated issue, the barriers faced by the Down syndrome community, and the solutions proposed by expert clinicians and researchers here.