The LuMind IDSC community and caregivers across the U.S. participated in “Challenges of Caregiving,” an online survey of caregiver perspectives on a range of topics that are important to the Down syndrome community, including: Employment, Caregiving Journey, Healthcare Access and Satisfaction, Clinical Trial Participation.
Dr. Eric Rubenstein, Nicole Kyprianou and their team at the Boston University School of Public Health, as well as co-authors and advisers who were involved in crafting this survey produced an article that was recently published in the Journal of Intellectual Disability Research.