Research NewsPress ReleaseResearch Spotlight Expert panel addresses inequitable access to Alzheimer’s drugs for adults with Down syndrome Seeking to rectify existing federal and state policies which prevent people with intellectual disabilities from…Kate O’NeillJune 1, 2023
Community Spotlight LuMind IDSC joins Advocacy Day on Capitol Hill In April, leaders from LuMind IDSC joined with 350 self-advocates, caregivers, and professionals to meet…Kate O’NeillMay 12, 2023
Research NewsResearch Spotlight LuMind IDSC Statement re: Donanemab Phase 3 Results Pharmaceutical company Eli Lilly today announced results of a phase III clinical trial that proves…Kate O’NeillMay 3, 2023
Research SpotlightResearch NewsSleep Apnea Important progress in the treatment of sleep apnea and Down syndrome At the end of March, the US Food & Drug Administration approved Inspire’s Hypoglossal Nerve…Kate O’NeillMarch 29, 2023
Research SpotlightCommunity Spotlight Hope and Action for Down syndrome Alzheimer’s research on WDSD 2023 Each year, the Down syndrome community and our supporters – family, friends, businesses, organizations and…Kate O’NeillMarch 21, 2023
Community Spotlight An athlete’s heart and a charmer’s smile: meet Armond Maillard March 21st is “Down Syndrome Awareness Day,” a day designated by the United Nations to…Kate O’NeillMarch 17, 2023
Community Spotlight Beyond Down Syndrome: The Friedman family turns experience into guidance Parent, advocate, and published author, Steve Friedman has used his family's recent experiences to help…Kate O’NeillMarch 15, 2023
Research SpotlightResearch News Fierce Biotech article highlights dearth of inclusion in Alzheimer’s research "Alzheimer's meds are here. But for the Down syndrome community, it's still the 1980s" by…Kate O’NeillMarch 2, 2023
Research SpotlightPress ReleaseResearch News With support from Lilly, LuMind IDSC launches key research and awareness activities to advance Down syndrome research 2/22/2023 (Burlington, MA) – Today the LuMind IDSC Foundation, a leading national Down syndrome research…Kate O’NeillFebruary 23, 2023
Research SpotlightCommunity Spotlight Statement on accelerated approval of Leqembi to treat mild-stage Alzheimer’s disease in the general population On Friday, January 6, the U.S. Food & Drug Administration (FDA) granted accelerated approval for…Kate O’NeillJanuary 10, 2023