Community SpotlightPublicationsResearch NewsResearch Spotlight Down syndrome collaborators now published in Alzheimer’s and Dementia “Adapting prescribing criteria for amyloid‐targeted antibodies for adults with Down syndrome” published in the journal…Kate O’NeillMarch 15, 2024
Research NewsCommunity SpotlightResearch Spotlight LuMind IDSC statement on FDA Advisory Committee for promising Alzheimer’s drug, donanemab LuMind IDSC is encouraged by today’s news that the U.S. Food and Drug Administration (FDA)…Kate O’NeillMarch 8, 2024
Research NewsResearch Spotlight Study: Medicare, Medicaid, and Dual Enrollment for Adults with Intellectual and Developmental Disabilities. Medicare, Medicaid and Dual Enrollment for Adults with IDD Boston University School of Public Health…Shannon BergstresserJanuary 31, 2024
Research NewsCommunity Spotlight Reuters Article: Barriers to Latest Alzheimer’s Treatments for Down Syndrome Community Hampus Hillerstrom, CEO of LuMind IDSC Foundation and father to a child with Down syndrome,…Shannon BergstresserNovember 14, 2023
Community SpotlightResearch NewsResearch Spotlight Boston Globe OpEd People with Down Syndrome Now Left Out of Treatment LuMind IDSC and The Arc of Northeast collaborated on an OpEd that was recently published…Kate O’NeillSeptember 18, 2023
Research NewsResearch Spotlight Study: Use of Medicaid by Adults with Down Syndrome Medicaid Enrollment and Service Use Among Adults with Down Syndrome September 16, 2023 In a…Shannon BergstresserSeptember 16, 2023
Community SpotlightResearch News Key updates on Down syndrome community access to new Alzheimer’s drugs Five takeaways for the Down syndrome community: Updates on accessing the new Alzheimer’s drugsLuMind IDSC…Kate O’NeillJuly 7, 2023
Research NewsResearch Spotlight LuMind IDSC statement on FDA approval of Leqembi LuMind IDSC issues statement following FDA full approval of Leqembi™ to treat early-stage Alzheimer’s disease …Kate O’NeillJuly 7, 2023
Press ReleaseResearch News MapHabit Study: Assistive Technology Has Positive Outcomes for Children with Down Syndrome Study Finds Assistive Technology Has Positive Outcomes for Children with Down Syndrome and Their Caregivers …Kate O’NeillJune 2, 2023
Research NewsPress ReleaseResearch Spotlight Expert panel addresses inequitable access to Alzheimer’s drugs for adults with Down syndrome Seeking to rectify existing federal and state policies which prevent people with intellectual disabilities from…Kate O’NeillJune 1, 2023