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MapHabit Study: Assistive Technology Has Positive Outcomes for Children with Down Syndrome

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Study Finds Assistive Technology Has Positive Outcomes for Children with Down Syndrome and Their Caregivers  In partnership with the LuMind IDSC Foundation (LuMind IDSC), MapHabit, a neuroscience-based assistive technology (AT)…
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Expert panel addresses inequitable access to Alzheimer’s drugs for adults with Down syndrome

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Seeking to rectify existing federal and state policies which prevent people with intellectual disabilities from accessing new therapies for Alzheimer’s disease, a group of international experts are calling for modification…
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LuMind IDSC Statement re: Donanemab Phase 3 Results

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Pharmaceutical company Eli Lilly today announced results of a phase III clinical trial that proves their anti-amyloid drug, donanemab, significantly slowed cognitive and functional decline in people with early symptomatic…
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Important progress in the treatment of sleep apnea and Down syndrome

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At the end of March, the US Food & Drug Administration approved Inspire’s Hypoglossal Nerve Stimulator for children with Down Syndrome and significant sleep apnea who are 13 years and…
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Fierce Biotech article highlights dearth of inclusion in Alzheimer’s research

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"Alzheimer's meds are here. But for the Down syndrome community, it's still the 1980s" by Annalee Armstrong, Fierce Biotech An important article from industry publication Fierce Biotech highlights the lack…
Tau Tangles in Down syndrome related Alzheimer's disease

With support from Lilly, LuMind IDSC launches key research and awareness activities to advance Down syndrome research

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2/22/2023 (Burlington, MA) – Today the LuMind IDSC Foundation, a leading national Down syndrome research organization, announced a new collaboration with Eli Lilly and Company (Lilly) aimed at accelerating research…
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Results from “Challenges of Caregiving” Survey Published in Research Journal

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The LuMind IDSC community and caregivers across the U.S. participated in “Challenges of Caregiving,” an online survey of caregiver perspectives on a range of topics that are important to the…
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New steps forward in treating Alzheimer’s disease with lecanemab: Clinical trial reveals clear efficacy in removing brain plaque

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At an Alzheimer’s disease research conference last week, new clinical trial data was presented for an antibody drug candidate called lecanemab.  (Read more about the development of lecanemab here.) An…
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Report of the Neuroatypical Conditions Expert Consultative Panel

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innovation Detection of any cognitive impairment as part of the Affordable Care Act’s annual wellness visit in primary or other health care settings for adults with pre-existing neuroatypical or neurodivergent…
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Report of the Neuroatypical Conditions Expert Consultative Panel

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Detection of any cognitive impairment as part of the Affordable Care Act’s annual wellness visit in primary or other health care settings for adults with pre-existing neuroatypical or neurodivergent conditions…
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Results From T21RS’s COVID-19 International Survey on Vaccination of Individuals With DS

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In a study led by the LuMind IDSC Foundation, the T21RS COVID-19 Initiative launched an international survey to obtain information on the safety and efficacy of COVID-19 vaccines for individuals…
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Five Recent Down Syndrome Research Data Articles to Stay Up to Date

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Recently, two institutions in the Down Syndrome Clinical Trials Network (DS-CTN) published five studies about Down syndrome-related health and wellness, ranging from infectious diseases to mental health, skills, and independence.  This new…
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LuMind IDSC Statement on CMS Proposed Coverage for Anti-Amyloid AD Drugs

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During the past year, LuMind IDSC remained cautiously optimistic about  treatment possibilities that the development of new drugs for Alzheimer’s disease may bring to the Down syndrome community.  Because people…
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LuMind IDSC and Dr. Nicole White Publish “Parental Perspectives on Research for Down Syndrome”

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Dr. Nicole White, Hampus Hillerstrom, LuMind IDSC and a team of experts, recently published an article in the Journal of Applied Research in Intellectual Disabilities, that delves into the intricacies of…
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LuMind IDSC and Team of Experts Publish Article on Aging With DS and the Future of Research

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Dr. James Hendrix, LuMind IDSC's Chief Scientific Officer, along with a team of Down syndrome experts recently published an article in the Journal of Clinical Medicine, as part of the special issue…
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Expert Chat: A Conversation with Nicole White 

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From mom of four to Down syndrome researcher. Community Spotlight sat with Nicole White and discussed some of the challenges that prevent parents and caregivers from getting involved in the…