Skip to main content

Sleep apnea disproportionately affects the Down syndrome population (at least 10x more frequent) and, due to the inconvenience and challenges of overnight sleep studies, many individuals with DS go undiagnosed for years despite the consequences for their health. LuMind IDSC funded studies have shown that verbal IQ was 9 points lower in children with OSAS and Down syndrome, who also showed executive function deficits.

Treatment options such as CPAP only benefit a portion of those diagnosed with sleep apnea and most are not aware of the alternative treatment options. Improvements in the diagnosis and treatment of sleep apnea in Down syndrome are dearly needed and LuMind IDSC is supporting and/or developing solutions for both.

WHY IT MATTERS

Sleep apnea affects 60-80% of individuals with DS compared to 5% in the general population and untreated sleep apnea can affect behavior and cardiovascular health, slower cognitive development, and accelerate the onset of Alzheimer’s Disease. Per a recent LuMind IDSC caregiver survey, only 17% diagnosed with sleep apnea fully benefit from a CPAP mask. Many are not aware of alternative treatment approaches such as hypoglossal stimulation. Also, a diagnosis of sleep apnea through a hospital overnight stay sleep study (polysomnogram) is very cumbersome for people with Down syndrome and alternative solutions are needed.

girl sleeping scaled

CURRENT STUDIES AND CLINICAL TRIALS

  • MOSAIC: sleep apnea study for children by the University of Arizona, for families in driving distance of Tucson, AZ.
  • Hypoglossal Nerve Stimulator Clinical Trial: Sleep Apnea study led by Mass General Hospital and taking place at several sites across the country

RELATED ARTICLES

Reading 637834678437240740 2Conexión en EspañolSleep Apnea
July 18, 2022

Ocho Consejos Para Fomentar Hábitos Saludables Para Dormir Para Las Personas Con Síndrome de Down

A veces, conciliar el sueño y lograr descansar durante la noche no es tan fácil como quisiéramos. En algunos casos, la falta de sueño puede ser asistida al modificar ciertas rutinas…
Sleep apnea thumbnail 637835515606706500 7dEj44Community SpotlightSleep Apnea
March 22, 2022

Sleep Apnea and Down Syndrome

Every night, a large percentage of the population with Down syndrome struggle to fall asleep. When they do, they might struggle to achieve healthy and restful sleep. During March, which…
Boyreadingthumbnail 637798442582012100 GHmuA1Community SpotlightSleep Apnea
February 7, 2022

Eight Tips to Promote Healthy Sleep Habits for People with Down Syndrome

Sometimes falling asleep and having a restful night isn’t as easy as we would hope. In some cases, sleeplessness can be helped by tweaking certain routines and fostering healthy bedtime…